Saturday, October 5, 2013

Junior High Sweethearts Waiting for Their Happily Ever After

Tenyearwait's Story...

My husband and I married in September, 2007.  This was ten years after we started dating in Junior High school.  After marriage, I brought up having kids occasionally, but my husband just wasn't ready.  Then our friends started having kids and it seemed much more realistic to him.
 
In July 2009, we started TTC.  This way I could have a baby in April; I'm big on 'planning'.  Unfortunately, I couldn't plan for this.  How could you?  After a year of TTC, Pre-seed, how-to googling, phantom symptoms, and monthly failed PG tests, I went to my doctor for answers.  

An HSG showed that both of my tubes were dilated and would never work properly.  Both tubes would have to be removed and IVF is our only choice to carry our own babies.  Our paychecks would never cover surgery and IVF.  We had to put baby-making plans completely on hold while my husband went through college for the next 2 years. 

I had surgery in January and my first IVF in June.  What a process!  Unfortunately IVF #1 did not take, and we have a nice 5-year loan to keeping paying for it.  We've restarted and are heading to IVF #2.   (We didn't have any embryos leftover for an FET).

I am grateful that we still have a chance at this and am SO, SO thankful for the support I get from the IF group on the Bump boards.  I even lurk on PAIF for a little hope every now and then.  The OOP Meds Program is such a wonderful way to help each other out when we really could use a hand in making this process at least a little bit easier.  I would like to thank everyone for their help and understanding and hope that I can help/have helped someone else out even a tiny bit.

Monday, June 10, 2013

Mayzie15 & Her Husband are Eternally Grateful for the Donations They Received!


My husband and I were married May 2010.  I was 34 and he was 37 and I knew we married later but felt really good about our careers and that we were settled and we both couldn't wait to start a family.  We began trying to have a child shortly after we were married. 

I began temping, charting etc and after about 6 months of trying and seeing a negative pregnancy test each month I began to worry that something wasn't right.  I went to my OB and had FSH, AMH, HSG, Saline Sonogram etc and my husband did several tests including a sperm analysis test and we waited for the results.  My tests came back okay but my husband's test showed he had a very low sperm count.  We were told to meet with an RE and that our chances of having a child of our own was less than 1%.  We were devastated and told IVF with ICSI was our only chance of having a baby.  I have good insurance and live in CA - A mandated state for infertility insurance - but I found out we had no IVF insurance coverage for medications or the procedure. 

We saved for the first cycle and medications which were over $20k and our cycle didn't go as planned and we failed that cycle.  Our RE told us to walk away and not "break the bank”.  During this difficult time I consider myself so lucky and fortunate to have met a wonderful group of women on the bump boards for TTC after 35 and the IF board to help me.  I had so many questions and they were incredibly supportive.   I really believe that without these ladies I don't know that I would have been able to continue this process for a second time and really believe IVF could work for us. 

We switched RE's and began the process all over again.  We exhausted our savings from our first cycle and started saving again.  I signed up for the OOP Meds donation program.  This cycle my meds were doubling and the price was doubling too.  If I was lucky to receive any donations - I was beyond grateful.   I received responses from women all over the country who were willing to ship their meds to me.  I offered to always pick up shipping as a small gesture and many women wouldn't accept and I sent Thank You cards to all and yet it seems like such a small gesture for what they were doing for me.  It is really important to me that they know without them I wouldn't be here - where I am today. 
I'm 30 weeks along and due August 19th with a baby boy.  As I write this the tears fall because I want all these women to know that the OOP Meds donation program and the ladies that run it and dedicate their time are truly angels to me. 

There isn't a day that goes by that I don't think of these women.  I think of all the women that are still going through IVF after multiple cycles and still trying for their take home baby - these ladies will be a part of me always and I will continue to follow their journeys.

Friday, March 29, 2013

Futurehuber 's Inspring Hope to Help Make This Dream a Reality


Our Story
by futurehuber


 

 
 
After being together 11 ½ years and married for just over six years, we finally decided it was time for a baby!  I had actually been ready for a little while, but the mister needed some time!  Well he got way more time than he bargained for!

I went off of birth control and we started “trying but not trying” in September of 2011.  The first few months I didn’t worry about temping, ovulation kits, etc. and I had no idea what cervical mucus was or what it meant (nor did I care to)!  We were in the la-la stages of baby making and I just tried to make sure we “had relations” around the textbook 14th day of my cycle. 

The first cycle after I went off birth control, I actually thought I was pregnant!  I even went out and bought hubby a “we’re pregnant” gift, devised a grand plan for telling him, and also got gifts for the future grandparents.  So as you can imagine, those gifts have probably gathered about 10 inches of dust sitting up on a shelf in my closet. 

The first few cycles I didn’t notice anything unusual, my periods were pretty normal for the most part.  As months passed, I started to notice my periods getting funkier and longer.  Sometimes even super short. They were all over the place!  This on top of negative pregnancy test after negative pregnancy test, I started to realize something was wrong.

However…even though I knew something was wrong…nope, no going to the doctor!  We hadn’t been trying the lovely minimum of one year yet!  Silly me for thinking I could go see a doctor for something that I knew was wrong with me.

Meanwhile I had already started to buy all of the infertility books, download all the apps, taking my temp, charting, and loaded up on ovulation kits.  I kept that up until I finally got to see my doctor at the one-year mark, and not a day later!

Before I knew it, I was making an ultrasound appointment, getting blood work done, being referred to a reproductive endocrinologist (RE), etc.  And at the same time, I was seeing dollar signs “cha-chinging” in my head as I booked each appointment and did each test.  While I was happy to have some coverage on testing/diagnosis as I know some women do not, my 50% copays were definitely starting to add up!  And this was just finding out why, not helping us to actually make a baby (which would be 100% copays!).

Soon came the diagnosis of PCOS.  I of course bawled my eyes out the second I got off the phone with the nurse.  I thought my life was over, read horribly scary things online (that I now know aren’t true or are at least rare), etc.  Little did I know this was the least of our worries.

Soon after my diagnosis, I scheduled an HSG.  It went pretty smoothly and wasn’t too painful like I had heard.  The doctor doing the HSG said at the end that my tubes looked good and they were all clear!  I embarrassingly burst into happy tears right when she said this as it was so great to get some good news for once! 

Fast forward about 30 hours later when I get a call from my regular doctor (at 8pm at night mind you??).  It went something like this: “I got the results from your HSG and now I know why you’re not getting pregnant!  You have a bicornuate uterus.” And then I heard various words such as heart-shaped, surgery, miscarriage, etc. as I tried to hold back the tears.  (And note that having a bicornuate uterus has nothing to do with conceiving, it has to do with being able to carry the baby. Nice one doc!)

Hang up the phone…straight to Google.  Oh my gosh, my life is seriously over!!  Now do I not only have the inability to get pregnant on my own, I also have problems carrying a baby once I do??  Massive amounts of crying ensues.  I’ve got my mom crying on the phone with me that night.  This is just unfair.

I discuss this diagnosis with my RE and she says my uterus can be bicornuate or septate and there is only one way to know for sure and that’s by doing a surgery called a laparoscopy (meanwhile I read about other, less-invasive alternatives to this surgery and wondered why we wouldn’t start there first?).  Again, dollar signs start flashing as I consider the cost of 50% of a surgery??  Yikes! 

I schedule the surgery appointment and just start feeling really uneasy about this decision.  Luckily thanks to the lovely ladies in The Bump community, I got the idea and the courage to ask my RE for a saline ultrasound.  Supposedly they can tell the difference between a bicornuate and septate uterus by doing this simple, in-office procedure that is similar to an HSG, but a lot less painful.  Plus it was only going to be about $150 OOP for us versus who knows what amount for the surgery!

I go in for the ultrasound and within like 10 seconds, my RE says “Well it looks good, you don’t have either one!”  What??  Are you kidding me??  I just stressed and bawled my eyes out for a month and almost had surgery for nothing??  But of course I am ecstatic to get this great news!  Now I am just back to dealing with PCOS.  RE gives me a prescription right then and there for Clomid (perfect timing in my cycle) and I am on my way to my first medicated cycle and I’m filled with hope and excitement!

Then the next day happened.  The most dreaded call of all.  Hubby’s semen analysis results are in.  Low everything.  We, ourselves, hit an all time low.  This happened at the beginning of the weekend and we barely spoke to each other all weekend.  We just didn’t know what to do with all of this bad news, all of the ups and downs.  It was exhausting. 

I will say one thing though, the timing of these results could not have been any better because just two days before (when I thought we were still dealing with the uterus issue), my thoughts were if anything else was wrong with us, that was it, I wasn’t going to do anything more.  I would have accepted that having a baby was not in the cards for us.  No more testing, no extreme measures to get pregnant, etc.  If I couldn’t ovulate and my husband didn’t have the proper sperm to get me pregnant and I didn’t have the ability to properly carry a baby, or most likely lose the baby once pregnant, this just had to mean something!  It was just not meant to be.  So I am thankful I was cleared of my possible uterine issue the day before as I would have thrown in the towel right then and there once we got the semen analysis results.

Eventually we do an IUI (artificial insemination), change RE’s, have hubby see a urologist, gave a shot at working on his swimmers via vitamins and antibiotics (per the uro), then try two more IUIs.  All of this resulted in negative pregnancy tests, slightly better swimmers (but not good enough), more tears and frustration, and an onslaught of medical bills.

After three failed IUIs and the fact that we are dealing with male infertility, we knew it was time to move on to IVF.  We just didn’t want to waste the time and money anymore.  It was time to pull out the big guns…and the checkbook (again)! 

IVF is a lot of money but we truly believe it is worth it and are willing to do whatever we can to make our dream come true.  We are so thankful for the OOP Med program for helping us make this dream a reality.  It is a wonderful program and stems from such an exceptional online community of women.  I honestly don’t know what I would do without this support during our struggle.  I look forward to “paying it forward” and donating any leftover meds I might have in order to help out other women in need. 

Thank you for reading my story and may all of your stories have a happy ending!